About ALS Society of Canada
The ALS Society of Canada (ALS Canada) works with the ALS community to improve the lives of people affected by ALS through community-based support, advocacy and investment in research to achieve our vision – a future without ALS. Amyotrophic Lateral Sclerosis (also known as ALS, Lou Gehrig’s disease, or motor neuron disease) is a disease that gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Your ability to walk, talk, eat, swallow, and eventually breathe will progressively decline – most often people die within two to five years of diagnosis.
As a registered charity that receives no government funding, all of ALS Canada’s community-based support services in Ontario, advocacy efforts and research are funded entirely through the generosity and efforts of people like you – our donors. Your donor dollars make a difference for the lives of 3000 individuals living with ALS and the loved ones and caregivers that support them daily.
How your gift will be used
The first gene known to play a role in ALS was identified 25+ years ago. Research has accelerated since, to the point that there has been more progress in the last five years than ever before. ALS research is a quest to understand the biological causes and progression of the disease to develop therapies that will make it treatable.
Community Leads are valuable support to families living with ALS. They identify resources, advocate for care and provide advice. Community Leads visit people in their home, offer support for people living with ALS as well as their caregivers.
Someone living with ALS will need different types of equipment as the disease progresses, their muscles weaken and difficulty predicting when physical needs might shift from a walker to a wheelchair. ALS Canada’s equipment program provides equipment to those living with ALS for as long as needed and delivered at no cost.
ALS Canada’s advocacy efforts help decision-makers, federal and provincial, understand how inefficiencies, inconsistencies in the healthcare system are leaving people with ALS behind. We also engage at the local level with health care providers/agencies to help the people we support access services and resources.