Hydrocephalus Canada



Hydrocephalus Canada is now in its 50th year of leadership and service. We thank everyone in our community for helping us to continue to offer the services to support those living with spina bifida and hydrocephalus.

At Hydrocephalus Canada, we are grounded by 3 guiding statements:

Our Mission

Connecting the spina bifida and hydrocephalus communities across Canada through services, support, education, awareness and research.

Our Vision

A future without spina bifida and hydrocephalus.


Hydrocephalus Canada (HC) is the trusted source for compassionate, progressive and innovative solutions that drive efforts to:

  • Develop a Canadian strategy; to increase awareness about hydrocephalus and spina bifida
  • Create solutions that support prevention, early and accurate diagnosis and access to appropriate treatment, advancement of new treatments and optimal outcomes
  • Develop, establish, enhance and maintain education and awareness resources and encourage inclusive supportive hydrocephalus and spina bifida communities

Fund Impactful Research

Hydrocephalus Canada has a devoted staff and a strong, diverse and innovative Board of Directors with legal, financial, scientific, media and not for profit experience. It is counselled by a Medical Advisory Board (MAB) comprised of experts who specialize in hydrocephalus and spina bifida, and who are known and respected internationally. As the authoritative voice of Canadians living with hydrocephalus and/or spina bifida, we help those impacted by conditions to not only survive but thrive.

Our Impact

Hydrocephalus Canada is your best source for information about any aspect of spina bifida and/or hydrocephalus. Researched, quality information is provided on education, disability related issues and all medical topics. Resources and support for these families and individuals is key to help impact everyone in support of living their best life.



See what your legacy could be

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How your gift will be used

Your gift will help create a safe, supportive and informative space for individuals and families living with Hydrocephalus and/or Spina Bifida.

A warm support team offering one on one support, a “A GUIDE TO HYDROCEPHALUS”, key support groups for individuals and caregivers.  Important Educator’s Guides, Parent Handbooks and other helpful resources for a student of any age. We work directly with public education programs to spread awareness and key tools. Important Scholarships & Bursaries to support further education and success.  As well as a resource and support center.  Online webinars, custom yoga classes, complimentary books, publications, age appropriate books and so much more.


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